By: Patty Butts
My journey with chronic fatigue began over twenty years ago when I was diagnosed with Chronic Fatigue Immune Dysfunction (CFIDS) and Fibromyalgia (FMS). I was so ill my doctor wanted to give me medical disability. After four years of agony, I finally said to my doctor, “I either want to get better or I want to die.”
Since then, I have drastically changed my diet, recovered, finished a doctoral degree in Holistic Nutrition, and have more energy than I did 30 years ago. My passion now is to educate others and give them hope for recovery.
It began with a sudden onset. I had gone on the Fit for Life diet, eating fruit in the morning and vegetables in the afternoon. I didn’t realize I had candida and eating fruit was like pouring gasoline on a fire….fueling systemic candida. I felt like a walking corpse. While trying to walk or get out of bed in the morning, it seemed as if I was beating a dead horse.
With each step I took my feet felt like I was walking on pins and needles. The pain was excruciating, not only in my feet, but in every joint and muscle. My lymph nodes ached and were swollen. My kidneys, my liver, and my spleen hurt. My doctor did a round of blood tests and found the blood tests were normal. Nothing was wrong with me. I felt like I was dying, and he found nothing wrong with me.
My doctor prescribed an anti-depressant that caused tardis dyskinesia (swelling of the tongue because of an allergic reaction to medication). My tongue became thick, and I couldn’t enunciate my words properly. My mouth was constantly dry. While attempting to sleep, I felt like I was doing round after round of backward somersaults. My life was so out of control I thought I might die and knew I could if I stopped fighting to get well and just stayed in bed. When I stopped taking the antidepressant, the side effects of dyskinesia went away.
The doctor then referred me to a counselor who recommended Prozac as the panacea for everything. By the first week I was more depressed than ever and by the second week I felt suicidal. Since then I have learned about the gene mutation MTHFR that doesn’t allow the liver to detoxify. Therefore, taking a medication that the liver cannot detoxify can cause suicidal feelings. All mental health begins in the gut. The counselor recommended doubling the dosage. No way was I going to double the dose. I had done some research and found I was not the only one who responded to Prozac that way.
Some of my friends and family thought I was faking my illness because I looked okay. Others knew me to be hard working and dedicated and knew I was really ill. I looked okay, but I couldn’t stand up without leaning on a wall because I was so weak and dizzy. My short-term memory was fouled up. Concentrating and thinking was a chore and trying to read was difficult. I wondered if I had an early onset of Alzheimer’s. I was depressed, and it seemed I was being sucked into a black hole.
