Archive for fibromyalgia

“No food that causes me to be ill is worth it”

By: Robyn Grow

I’d like to share what I have learned through my experience with rheumatoid arthritis (RA). Several years ago I began having soreness in my inner-thigh area. At first I thought that I had somehow pulled a muscle because I had been squatting down a lot as I was working with the first-graders that I teach. I decided that I was out of shape and that I should workout more to get rid of the soreness. The pain progressed to the extent that I had sharp pain radiating down my leg, sometimes both legs. I could not stand on one leg (like when I was putting on a shoe). I went to my regular physician’s assistant and was told that nothing was wrong and that people have aches and pains.

Later I noticed that my hands and feet began to feel as if they had been slammed in a door. I went to a rheumatologist and found that I had both rheumatoid and osteoarthritis. The x-rays also concluded that I had osteitis pubis (a side effect of RA and osteo attacking my pubic joint). I began needing to use a cane to walk on most days because the pain seemed to be weight bearing. I felt like I was walking around with some kind of fracture (or sciatic nerve down both legs). I had the pain all of the time. I could no longer teach, and I began to feel like my quality of life was slipping away from me. I began visiting an endless succession of doctors and enduring the usual required MRI, X-rays and CAT scans. All the experts agreed that I had a problem, but they didn’t have any healing solutions for me. Instead, they only offered me drugs, mostly biologics (which is mild form chemo) like Methotrexate and steroid injections. Since I am in my early 50’s, these drugs were scary for me because of the long-term dangers associated with them. I chose to take a daily antibiotic (hydroxichloriquin) that kept the rheumatoid under better control and gave me more energy to focus on walking normally again.

I spoke with a physiologist, and she told me that every pound that I lose would take 6-8 pounds of pressure off of my joints. I thought to myself, “That sounds like an easy way to lift some of the immense pain that I am feeling.” So, I began a journey to feel better by losing 30 pounds. Losing 30 pounds is equivalent to 180 pounds of pressure off of my aching joints. The weight-loss did lift some of the pain, however I was still in jeopardy of losing my ability to walk as the pain was still there every time I stood, walked or tried to lift anything.

I went the full route in using homeopathic remedies. Each time I tried a new combination, I stuck to it for 2-3 months. I never really felt like there was any cure or relief in using any of them. I also used several of the miracle cures, drinks, and concoctions. Most didn’t help, and some of them even made me very ill. Through research I learned that if you have a serious condition, some homeopathics can actually block your prescribed medications, so natural remedies should be run by the prescribing doctor first. After about a year and a half of this, the only natural remedies that proved helpful to me were turmeric and ginger.

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“All these amazing physical blessings began to unfold”

Erik and Wendy Jensen Before and AfterBy: Erik Jensen

Three years ago I was feeling that my health was beginning to slowly decline. I was not happy with the way I felt but accepted that it was probably part of growing older and that there was probably nothing that could be done. I was 60 lbs overweight, cholesterol was about 220, blood pressure 140/90, and I was taking drugs for high blood pressure and high cholesterol. My feet developed neuropathy, painful arthritis was spreading in my fingers, and I had restless leg syndrome for years (about every 15 seconds during sleep my leg would twitch). I also had an autoimmune disease in my eye that would flair up regularly, my knees and ankles would begin to hurt if I ran or hiked regularly, and every morning I woke up exhausted. I had a scary episode hiking in the Sierras when my body just quit.

My wife Wendy has suffered for years with fibromyalgia symptoms. She also suffered with terrible acid reflux, diverticulosis, kidney stones, and allergies. The only way she could control the acid reflux was to take a calcium blocker that would eventually weaken her bones. Her blood sugar was at pre-diabetic level, and she had difficulty with exercise and knee problems.

We were discussing the new stage of life we were entering as our children are growing up and will soon be on their own. We began to include in our prayers our desires to prepare ourselves spiritually, financially, and physically so that we could serve missions and be useful as we enter into the last third of our lives. The answer to our prayers for physical preparation began at Costco one day as we were looking at a product called a Nutribullet. A lady next to us remarked that her brother had bought one and had been able to lose a lot of weight. We bought it and for the next few weeks it sat on our kitchen floor unopened until two of our sons decided to unpack it and see how it worked. We read the smoothie recipes and started to have them for breakfast. Our energy levels increased, we lost a little weight and found that our appetites were somewhat decreased during the morning. I continued to occasionally read about nutrition on the Internet, but it was difficult to figure out what to do since there are so many opinions.

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“Some days I feel so good, I can’t believe how good I feel”

pattsy-dayleyBy: Pattsy Dayley

I am originally from Oklahoma and am now 77 years old. I grew up eating lots of fried food. We had biscuits made from white flour and gravy. The gravy was made using bacon fat, lard or sausage or hamburger. Whatever we had, mom would fix. We ate plenty of beans and cornbread, but she added lots of bacon fat, ham, or fatback. Whatever little meat we had, she added it. Mom grew a garden and cooked with lots of vegetables, but they were heavy laden with fat. We used canned milk to make gravy. As we had babies, we used it for baby formula.

As a child I had lots of croup and tonsillitis, and my legs hurt all the time. My mom would rub them to give me some relief. She gave me cod liver oil to help my bones and then when we had sore throat, she would swab our throats with Merthiolate. For croup, she gave us a spoonful of sugar with two drops of kerosene added to it. It worked so I was able to breathe.

I had low energy levels even as a child. In my early 20s, I had some lumps removed from both breasts and under each arm. Thankfully, they were benign. At 25 I had a tonsillectomy, at 32 a hysterectomy. In my 40’s, I was diagnosed with fibromyalgia. My asthma came back about the same time. In my 50’s, I had my gallbladder removed. All this time I was still suffering with leg pain and then I was diagnosed with nerve problems; the doctor called it Morton’s neuroma. He wanted to remove the nerve. I refused. By this age I was tired of being cut on.

I tried being a vegetarian, and it helped. I felt better. With my family not doing the same diet, I went back to SAD (Standard American Diet). I also went back to lots of pain. The past two years I spent a lot of time in bed. I wasn’t able to walk far and had horrible stomach pains. The doctor prescribed Omeprazole generic stomach medicine. It didn’t help at all. I changed doctors. He thought I was gluten intolerant. I tried the gluten-free diet, and it helped the swelling in my stomach, but I still had horrible pain.

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“I am finally happy with my weight!”

Margie Burton Before and After
By: Margie Burton

I’ve had weight and health issues most of my life. As a child I was known as “thunderthighs” among the taunting peers. I had an emergency appendectomy the last day of elementary school, and that was the first of many surgeries yet to come. At the age of 13, a fall off my beloved horse broke my tailbone and began a series of issues with my lower back that has continued through adulthood.

I was bedridden due to my back the latter part of my senior year, and during that time I gained about 40 pounds. I never realized it since I never got up to dress or go to the bathroom. I tried dieting on and off with some success here and there. I lost 30 pounds in college during a month-long survival course traveling 250 miles on foot and living off the land. That life-changing experience shocked my internal system to change moving my bowels from once-a-week to a daily event. I went on to my first back surgery during college.

I married and had continued health problems during pregnancies. I was bedridden again during my second pregnancy when a disc in my lower back became herniated. I gained 45 pounds with each pregnancy but deliveries were successful. I was plagued with cluster migraine headaches, some of which lasted weeks. I tried every diet that came along: the grapefruit diet, Atkins, Weight-Watchers, Nutrisystem, SlimFast, and many I can’t even remember. I was successful in losing weight with most of them, but the pounds would creep back. I spent hours running at the school track, pushing the stroller and carefully watching my other children on the football field as I ran laps.

My health issues continued as I was diagnosed with fibromyalgia, trigeminal neuralgia, rheumatoid arthritis, myofascial pain syndrome, irritable bowel syndrome and degenerative disc disease. I took medication every day to help prevent the migraine clusters that still came if I forgot to take the meds. Many of the side effects of the medications included weight gain, so I had my excuse.

My two daughters developed eating disorders in their teenage years. I tried to convince myself that I had not caused them, but with mom dieting her way through life, the emphasis was definitely there. We shared Weight Watcher meetings together and celebrated successes at losing a few pounds. The girls threw themselves into exercising. I would convince myself that my poor health would not let me run anymore so my life became sedentary. I was tall, so I could carry many extra pounds without looking fat. It was my grandson who asked me one day why I was so fat.

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“Why did God invent food?!?”

Shara MitchellBy: Shara Mitchell

Up until the last year of my life, I have lived with one foot in the camp with the “health nuts” and one foot in the Standard American Diet (SAD). When I was a child, my mother taught me to love wholesome foods, vitamin supplements, and occasional fasting for detoxification. I was never really taught how to cook, however, and when I became an adult and got married, I wanted to please my family. Although I started out trying very hard to cook from scratch and make healthy foods, eventually I found that my family liked it better when I made recipes that were less healthy.

I had vowed to never let my children drink soda, but as many years went by (years of overwhelm that can wear a person’s resolve down), I not only started allowing my kids soda, but also found myself drinking Diet Coke daily… sometimes twice per day. My kids hated chunky vegetables in the soup that I loved to make, so I stopped making it and made the creamy soups that made them happy. My husband at the time seemed to appreciate it more when I gave in and kept the peace by serving less healthy foods, so I felt like I was alone, and I gradually gave up my resolve to feed my family in a healthy way.

Although I had never struggled with weight, energy, or general heath after my first two babies, things started to change after baby number three. I couldn’t get rid of the last 10 pounds of baby weight, and I started to feel really tired and achy much of the time. My stress level was high, and I was overwhelmed with small children. I basically ignored the problem, and coped by doing yoga to ease the muscle tension that at times would overwhelm me. I wasn’t really exercising much and my cooking was “survival cooking”… cheese quesadillas and juice, you know, convenient kid food.

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I heard the Savior say, “You are going to be okay”

Patty ButtsBy: Patty Butts

My journey with chronic fatigue began over twenty years ago when I was diagnosed with Chronic Fatigue Immune Dysfunction (CFIDS) and Fibromyalgia (FMS). I was so ill my doctor wanted to give me medical disability. After four years of agony, I finally said to my doctor, “I either want to get better or I want to die.”

Since then, I have drastically changed my diet, recovered, finished a doctoral degree in Holistic Nutrition, and have more energy than I did 30 years ago. My passion now is to educate others and give them hope for recovery.

It began with a sudden onset. I had gone on the Fit for Life diet, eating fruit in the morning and vegetables in the afternoon. I didn’t realize I had candida and eating fruit was like pouring gasoline on a fire….fueling systemic candida. I felt like a walking corpse. While trying to walk or get out of bed in the morning, it seemed as if I was beating a dead horse.

With each step I took my feet felt like I was walking on pins and needles. The pain was excruciating, not only in my feet, but in every joint and muscle. My lymph nodes ached and were swollen. My kidneys, my liver, and my spleen hurt. My doctor did a round of blood tests and found the blood tests were normal. Nothing was wrong with me. I felt like I was dying, and he found nothing wrong with me.

My doctor prescribed an anti-depressant that caused tardis dyskinesia (swelling of the tongue because of an allergic reaction to medication). My tongue became thick, and I couldn’t enunciate my words properly. My mouth was constantly dry. While attempting to sleep, I felt like I was doing round after round of backward somersaults. My life was so out of control I thought I might die and knew I could if I stopped fighting to get well and just stayed in bed. When I stopped taking the antidepressant, the side effects of dyskinesia went away.

The doctor then referred me to a counselor who recommended Prozac as the panacea for everything. By the first week I was more depressed than ever and by the second week I felt suicidal. Since then I have learned about the gene mutation MTHFR that doesn’t allow the liver to detoxify. Therefore, taking a medication that the liver cannot detoxify can cause suicidal feelings. All mental health begins in the gut. The counselor recommended doubling the dosage. No way was I going to double the dose. I had done some research and found I was not the only one who responded to Prozac that way.

Some of my friends and family thought I was faking my illness because I looked okay. Others knew me to be hard working and dedicated and knew I was really ill. I looked okay, but I couldn’t stand up without leaning on a wall because I was so weak and dizzy. My short-term memory was fouled up. Concentrating and thinking was a chore and trying to read was difficult. I wondered if I had an early onset of Alzheimer’s. I was depressed, and it seemed I was being sucked into a black hole.

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